grant

Strengthening community based paliative care services: Towards a better understanding of medical aspects of caring for c [ 2004 - 2007 ]

Also known as: How can we provide better "user friendy" care to children [and their families] at the end of life?

Research Grant

[Cite as https://purl.org/au-research/grants/nhmrc/334367]

Researchers: A/Pr John Heath (Principal investigator) ,  Prof Vicki Anderson

Brief description Caring for children [and their families] in the palliative phase of an illness offers unique challenges. Community based palliative care programs provide a predominantly adult focused service, their experience with children being limited by smaller numbers. This study aims to better characterize the medical aspects of caring for terminally ill children in Australia, thru the use of a parental survey in a large representative cohort at the Royal Children's Hospital, Melbourne (RCH). The focus will be to identify issues relating to symptom assessment and management, family and caregiver support and psychosocial-bereavement support. The knowledge gained will be used to redesign-strengthen links between paediatric hospitals and community based palliative care programs.

Funding Amount $AUD 68,892.00

Funding Scheme NHMRC Strategic Awards

Notes Palliative Care Research

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Identifiers
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ACN 633 798 857