RARE-Bestpractices: Best practices for management of rare diseases [ 2013 - 2016 ]

Research Grant

Researchers: Prof Kathryn North (Principal investigator) ,  Prof Hugh Dawkins

Brief description Although by definition rare, over 8000 rare diseases affect approximately 1.2 million Australians. Patient care has suffered from fragmented approaches and lack of information available to health professionals. This project brings together major experts on rare diseases to improve the translation of scientific progress into tangible benefits for patients. The ultimate impact of this work will be the significant improvement of health outcomes and quality of life for rare disease patients and reducing inequality in care.

Funding Amount $AUD 640,231.59

Funding Scheme Targeted Calls

Notes Aust/EU Collaborative Research Grant