Data

Myeloma and Related Diseases Registry

Health Data Australia Contributor Records
Spencer, Andrew
Viewed: [[ro.stat.viewed]] Cited: [[ro.stat.cited]] Accessed: [[ro.stat.accessed]]
ctx_ver=Z39.88-2004&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Adc&rfr_id=info%3Asid%2FANDS&rft_id=info:doi10.26180/24082686&rft.title=Myeloma and Related Diseases Registry&rft.identifier=http://doi.org/10.26180/24082686&rft.publisher=Monash University&rft.description=This observational study is collecting information from patients to form the Myeloma and Related Diseases Registry (MRDR)Who is it for?You may be eligible for this study if you have a diagnosis of multiple myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermined significance (MGUS).Study detailsMedical information including diagnostic tests, therapy and demographics will be provided by medical records. Participants can also provide information regarding their quality of life using a questionnaire.It is hoped this registry will enable clinicians and hospitals to provide the best possible care to people with the included conditions and allow the evaluations of new therapies.&rft.creator=Spencer, Andrew &rft.date=2023&rft.relation=https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?ACTRN=12618000659202&rft_rights=Creative Commons Attribution 4.0 International https://creativecommons.org/licenses/by/4.0/legalcode&rft_subject=Health surveillance&rft.type=dataset&rft.language=English Access data via landing page
Cite Saved to MyRDA Save to MyRDA

Licence & Rights:

view details

Creative Commons Attribution 4.0 International
https://creativecommons.org/licenses/by/4.0/legalcode

Access:

Other

Full description

This observational study is collecting information from patients to form the Myeloma and Related Diseases Registry (MRDR)

Who is it for?
You may be eligible for this study if you have a diagnosis of multiple myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermined significance (MGUS).

Study details
Medical information including diagnostic tests, therapy and demographics will be provided by medical records. Participants can also provide information regarding their quality of life using a questionnaire.

It is hoped this registry will enable clinicians and hospitals to provide the best possible care to people with the included conditions and allow the evaluations of new therapies.

Notes

HeSANDA 1.0.0

Created: 2023-09-05

Updated: 2023-09-14

Issued: 2023

This dataset is part of a larger collection

Click to explore relationships graph
Help

Related Publications

Subjects
Health surveillance |

User Contributed Tags    

Login to tag this record with meaningful keywords to make it easier to discover

Identifiers
ACN 633 798 857