Data

Longitudinal Head injury Outcome Study: data

Monash University
Prof Jennie Ponsford (Aggregated by)
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ctx_ver=Z39.88-2004&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Adc&rfr_id=info%3Asid%2FANDS&rft_id=1959.1/470459&rft.title=Longitudinal Head injury Outcome Study: data&rft.identifier=1959.1/470459&rft.publisher=Monash University&rft.description=This dataset contains longitudinal survey data from more than 2000 individuals who have sustained moderate to severe Traumatic brain injury (TBI) over a 20-year period. It is an output of a project which has received funding from the Transport Accident Commission (TAC) and is supported by the Victorian Neurotrauma Initiative. Researchers Jennie Ponsford ( Monash University) and John Olver (Epworth Hospital) have used their own Structured Outcome Questionnaire (SOQ) to collect data since 1990. In addition they have used the following instruments: Extended Glasgow Outcome Scale (GOS-E), Sickness Impact Profile (SIP), Fatigue Severity Scale (FSS), Craig Handicap Assessment and Reporting Technique (CHART), the Hospital Anxiety and Depression Scale(HADS) and the Drug Abuse Screening Test — 20 (DAST-20). Participants are invited to complete surveys and attend interviews with medical personnel. Some participants have been interviewed a number of times at intervals of 1, 2, 5, 10 (n=700), 15 (n=309) and 20 (n=53) years. Initial data collection is paper-based and all data is transferred into SPSS for analysis by the research team. Data is copied to a web-based system in the Department of Epidemiology and Community Health supervised by Professor Peter Cameron before it is entered into the Victorian State Trauma Outcomes Registry (VSTORM). Extensive publications provide more information. The data collected from this study will be used to identify how physical, cognitive, behavioural and emotional changes evolve over the lifespan of a person with Traumatic brain injury and their emotional consequences. The findings of this study will be used in the development and evaluation of intervention strategies to improve quality of life in people who have sustained moderate to severe brain injuries.&rft.creator=Prof Jennie Ponsford&rft.date=2012&rft.relation=10.1212/WNL.0b013e3181e0438b&rft.relation=10.1375/brim.11.3.253&rft.relation=10.1136/jnnp.2010.210021&rft.coverage=AU-VIC&rft_subject=Biological Psychology (Neuropsychology, Psychopharmacology, Physiological Psychology)&rft_subject=PSYCHOLOGY AND COGNITIVE SCIENCES&rft_subject=PSYCHOLOGY&rft_subject=Neurocognitive Patterns and Neural Networks&rft_subject=COGNITIVE SCIENCE&rft_subject=Health, Clinical and Counselling Psychology&rft_subject=Health and Community Services&rft_subject=MEDICAL AND HEALTH SCIENCES&rft_subject=PUBLIC HEALTH AND HEALTH SERVICES&rft_subject=Mental Health&rft_subject=Mental health&rft_subject=Rehabilitation&rft_subject=Outcomes&rft_subject=Outcome prediction&rft_subject=Psychosociological adjustment&rft_subject=Cognitive and behavioural sequelae&rft.type=dataset&rft.language=English Access the data
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Full description

This dataset contains longitudinal survey data from more than 2000 individuals who have sustained moderate to severe Traumatic brain injury (TBI) over a 20-year period. It is an output of a project which has received funding from the Transport Accident Commission (TAC) and is supported by the Victorian Neurotrauma Initiative. Researchers Jennie Ponsford ( Monash University) and John Olver (Epworth Hospital) have used their own Structured Outcome Questionnaire (SOQ) to collect data since 1990. In addition they have used the following instruments: Extended Glasgow Outcome Scale (GOS-E), Sickness Impact Profile (SIP), Fatigue Severity Scale (FSS), Craig Handicap Assessment and Reporting Technique (CHART), the Hospital Anxiety and Depression Scale(HADS) and the Drug Abuse Screening Test — 20 (DAST-20). Participants are invited to complete surveys and attend interviews with medical personnel. Some participants have been interviewed a number of times at intervals of 1, 2, 5, 10 (n=700), 15 (n=309) and 20 (n=53) years. Initial data collection is paper-based and all data is transferred into SPSS for analysis by the research team. Data is copied to a web-based system in the Department of Epidemiology and Community Health supervised by Professor Peter Cameron before it is entered into the Victorian State Trauma Outcomes Registry (VSTORM). Extensive publications provide more information.

Notes

Questionnaire data: Structured Outcome Questionnaire (SOQ); Extended Glasgow Outcome Scale (GOS-E), Sickness Impact Profile (SIP), Fatigue Severity Scale (FSS), Craig Handicap Assessment and Reporting Technique (CHART), the Hospital Anxiety and Depression Scale (HADS) and the Drug Abuse Screening Test — 20 (DAST-20).

Significance statement

The data collected from this study will be used to identify how physical, cognitive, behavioural and emotional changes evolve over the lifespan of a person with Traumatic brain injury and their emotional consequences. The findings of this study will be used in the development and evaluation of intervention strategies to improve quality of life in people who have sustained moderate to severe brain injuries.

Data time period: 1990 to 2010

This dataset is part of a larger collection

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iso31662: AU-VIC

Subjects
Biological Psychology (Neuropsychology, Psychopharmacology, Physiological Psychology) | Cognitive Science | Cognitive and behavioural sequelae | Health and Community Services | Health, Clinical and Counselling Psychology | Medical and Health Sciences | Mental Health | Mental health | Neurocognitive Patterns and Neural Networks | Outcome prediction | Outcomes | Psychology | Psychology and Cognitive Sciences | Public Health and Health Services | Psychosociological adjustment | Rehabilitation |

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