Data

HOPE Pilot Quantitative Raw Data (Feasibility, Appropriateness, Acceptability, Clinical Effectiveness Outcome measures)

Macquarie University
Alan Hakim (Aggregated by) Cliffton Chan (Aggregated by) Emre Ilhan (Aggregated by) Leslie Nicholson (Aggregated by) Min Tze Chew (Aggregated by)
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ctx_ver=Z39.88-2004&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Adc&rfr_id=info%3Asid%2FANDS&rft_id=info:doi10.25949/27676269.v1&rft.title=HOPE Pilot Quantitative Raw Data (Feasibility, Appropriateness, Acceptability, Clinical Effectiveness Outcome measures)&rft.identifier=10.25949/27676269.v1&rft.publisher=Macquarie University&rft.description=The Hypermobile Online Pain managemEnt (HOPE) program was developed for people with painful hypermobility syndromes and was pilot tested in this present study. We conducted a pilot randomised controlled trial to assess Feasibility of Intervention Measure (FIM), Acceptability of Intervention Measure (AIM) and Intervention Appropriateness Measure (IAM) as well as clinical effectiveness outcomes including brief pain inventory, bristol impact of hypermobility, DASS, pain self-efficacy and global impression of change (see readme files for names of all questionnaires used). Outcomes were assessed using online surveys at baseline, post-treatment and 3-months post-treatment. Results showed that the HOPE program was feasible, acceptable and appropriate, with some improvements in pain and impact of hypermobility. A fully powered trial is warranted to further explore clinical effectiveness of the program.This is the raw data from this pilot randomised controlled trial of the HOPE for hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) – A pilot randomized controlled trial of feasibility, acceptability and appropriateness study. MQ HREC approval was gained (520231630154261) and the ANZCTR registration is ACTRN12623001323617.&rft.creator=Alan Hakim&rft.creator=Cliffton Chan&rft.creator=Emre Ilhan&rft.creator=Leslie Nicholson&rft.creator=Min Tze Chew&rft.creator=Sarah Kobayashi&rft.creator=Verity Pacey&rft.date=2025&rft_rights= https://creativecommons.org/licenses/by-nc-sa/4.0/&rft_subject=Pain&rft_subject=Rheumatology and arthritis&rft_subject=Physiotherapy&rft_subject=Rehabilitation&rft_subject=Hypermobile Ehlers-Danlos Syndrome (hEDS)&rft_subject=pain management therapy&rft_subject=Pain Self-Efficacy&rft_subject=Patient Global Impression of Change&rft_subject=Feasibility&rft_subject=Appropriateness&rft_subject=Acceptability&rft_subject=DASS&rft_subject=Hypermobility Spectrum Disorder&rft.type=dataset&rft.language=English Access the data
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The Hypermobile Online Pain managemEnt (HOPE) program was developed for people with painful hypermobility syndromes and was pilot tested in this present study. We conducted a pilot randomised controlled trial to assess Feasibility of Intervention Measure (FIM), Acceptability of Intervention Measure (AIM) and Intervention Appropriateness Measure (IAM) as well as clinical effectiveness outcomes including brief pain inventory, bristol impact of hypermobility, DASS, pain self-efficacy and global impression of change (see readme files for names of all questionnaires used). Outcomes were assessed using online surveys at baseline, post-treatment and 3-months post-treatment. Results showed that the HOPE program was feasible, acceptable and appropriate, with some improvements in pain and impact of hypermobility. A fully powered trial is warranted to further explore clinical effectiveness of the program.

This is the raw data from this pilot randomised controlled trial of the "HOPE for hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) – A pilot randomized controlled trial of feasibility, acceptability and appropriateness" study. MQ HREC approval was gained (520231630154261) and the ANZCTR registration is ACTRN12623001323617.

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Acceptability | Appropriateness | DASS | Feasibility | Hypermobile Ehlers-Danlos Syndrome (hEDS) | Hypermobility Spectrum Disorder | Pain | Pain Self-Efficacy | Patient Global Impression of Change | Physiotherapy | Rehabilitation | Rheumatology and arthritis | pain management therapy |

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