Data

HOPE Pilot Qualitative Interview Raw Data (Feasibility, Appropriateness, Acceptability)

Macquarie University
Cliffton Chan (Aggregated by) Emre Ilhan (Aggregated by) Leslie Nicholson (Aggregated by) Min Tze Chew (Aggregated by) Sarah Dennis (Aggregated by)
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ctx_ver=Z39.88-2004&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Adc&rfr_id=info%3Asid%2FANDS&rft_id=info:doi10.25949/28225172.v1&rft.title=HOPE Pilot Qualitative Interview Raw Data (Feasibility, Appropriateness, Acceptability)&rft.identifier=10.25949/28225172.v1&rft.publisher=Macquarie University&rft.description=This pain management program was a stakeholder informed intervention adopting the biopsychosocial pain approach for people with hypermobility syndromes experiencing pain. Program feasibility, acceptability and appropriateness here were evaluated qualitatively to understand participants' experiences and perceptions of the program. One-on-one semi-structured online interviews of participants were undertaken with data analysed using inductive thematic analysis. The overarching themes from the interviewed confirmed the results of the quantitative study, that is the HOPE program was considered feasible, acceptable and appropriate for people with hypermobility syndromes. Our study findings will be used to refine future iterations of the program, which could be retested through a fully powered trial. &rft.creator=Cliffton Chan&rft.creator=Emre Ilhan&rft.creator=Leslie Nicholson&rft.creator=Min Tze Chew&rft.creator=Sarah Dennis&rft.creator=Sarah Kobayashi&rft.date=2025&rft_rights= https://creativecommons.org/licenses/by-nc-sa/4.0/&rft_subject=Pain&rft_subject=Rheumatology and arthritis&rft_subject=Physiotherapy&rft_subject=Ehlers Danlos syndrome&rft_subject=inductive thematic analyses&rft_subject=Hypermobility Spectrum Disorder (HSD)&rft_subject=Online Pain Management&rft.type=dataset&rft.language=English Access the data
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This pain management program was a stakeholder informed intervention adopting the biopsychosocial pain approach for people with hypermobility syndromes experiencing pain. Program feasibility, acceptability and appropriateness here were evaluated qualitatively to understand participants' experiences and perceptions of the program.

One-on-one semi-structured online interviews of participants were undertaken with data analysed using inductive thematic analysis.

The overarching themes from the interviewed confirmed the results of the quantitative study, that is the HOPE program was considered feasible, acceptable and appropriate for people with hypermobility syndromes. Our study findings will be used to refine future iterations of the program, which could be retested through a fully powered trial.

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Ehlers Danlos syndrome | Hypermobility Spectrum Disorder (HSD) | Online Pain Management | Pain | Physiotherapy | Rheumatology and arthritis | inductive thematic analyses |

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