The economic and social impacts of genetic sequencing for intellectual disability [ 2015 - 2020 ]

Research Grant

Researchers: Prof Deborah Schofield (Principal investigator) ,  A/Pr Kristine Barlow-Stewart ,  A/Pr Marcel Dinger ,  A/Pr Nadine Kasparian ,  A/Pr Tony Roscioli
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Brief description In this project we will quantify the social and financial costs to families of severe intellectual disability that is genetic in origin. We will assess these impacts in terms of poorer carer health, relationship breakdown, lost income and risk of poverty, as well as increased dependence on government, particularly on welfare payments, and reduced personal income tax paid. We will then determine the extent to which modern clinical genomics can contribute to ameliorating these impacts.

Funding Amount $AUD 1,304,845.93

Funding Scheme Partnerships

Notes Partnership Project for Better Health